Akcea respects the privacy of visitors to our website. You may visit our website without telling us anything about yourself. If you contact us and choose to provide personally identifiable information, such as your name, address, telephone number, or email address, we will use that information and may share it with other companies and/or individuals (e.g., our partners, consultants, and service providers) for the purpose for which you submitted it to us, such as to respond to your inquiry or to provide you with information that you requested. We will not send unsolicited messages to users of our website who indicate they do not wish to receive such messages. If you do not wish to receive unsolicited email messages from us, please contact us at email@example.com.
From time to time, our website may be configured to collect domain information. These data enable us to become more familiar with the users who visit our site, how often they visit, and what parts of the site they visit most often. Akcea uses this information to improve our website. No personally identifiable information is gathered in this process. This information is collected automatically and requires no action on your part.
Periodically, some pages on this website may use “cookies,” which are small files that the site places on your hard drive for identification purposes. These files are used for site registration and customization the next time you visit us. You should note that cookies cannot read data from your hard drive. Your web browser may allow you to be notified when you are receiving a cookie, giving you the choice to accept it or not. You can also refuse all cookies by turning them off in your browser. By not accepting cookies, some pages may not fully function, and you may not be able to access certain information on this website.
Storage and Transfer of Information
Akcea, or in some cases third-party companies and/or individuals that work with or for us, may store the personally identifiable data collected via this site in an electronic database. Akcea and these third parties may also exchange such data with each other or with you over the Internet or over intranet systems to process the data, send information to you in response to your request, or otherwise carry out the purposes described above. We may also release your personally identifiable data in response to a court order, subpoena, search warrant, or applicable law or regulation. In such circumstances we will take appropriate measures to ensure that the requester understands the sensitive nature of the personally identifying information that they may receive.
While Akcea makes reasonable efforts to protect the personally identifiable data collected through its website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or “hacking.” Any data transmitted over the Internet may be at risk.
This website is not intended for, or designed to attract, children under the age of 13. As noted above, we do not collect personally identifiable information unless you provided it to us—including an individual’s age.
Residents of California
The California Consumer Privacy Act of 2018 (CCPA) gives California residents the right to know what personally identifiable information we collect about them, including whether it is being sold or disclosed to third parties, and the right to prevent us from selling that information. In addition, if you are a California resident, California law provides you with the following rights with respect to your personal information:
- Right of Access/Right to Notice. You have the right to know what personal information we have collected about you, how that information is used, and the third parties to whom the information is disclosed or sold.
- Right to Deletion. With limited exceptions prescribed by law, you have the right to request that we delete any personal information we have collected about you.
- Right to Opt-Out of the Sale of Personal Information. Akcea does not sell personal information. However, if we were to sell your personal information to third parties, you would have the right, at any time, to direct us not to sell your personal information.
To submit requests related to these rights, you may contact us at firstname.lastname@example.org. You also may designate an authorized agent to make a request for access on your behalf. Your exercise of these rights will have no adverse effect on the price and quality of our goods or services.
Do-Not-Track Signals and Similar Mechanisms
Some web browsers may transmit “do-not-track” signals to websites with which the browser communicates. Our websites do not currently respond to these “do-not-track” signals.
Updating Your Information
If you wish to stop receiving emails or other communications from us, or if you have submitted personally identifiable information through our website and would like that information deleted from our records, please notify us at email@example.com. Please note that we reserve the right not to remove or amend information provided to us regarding an adverse drug event or any information that we are otherwise required to retain by law or regulation.
Links to Third Party Websites
For Additional Information